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Showing posts from August, 2015

Excuse my children's extreme behaviour

Many thoughts are consuming me tonight after the emotional turmoil our family endured today on this first MRI since Xavier's treatment ended.  I have learned a lot on this journey (an much more to learn) through therapy and continuously reading and researching. And if there is a positive in this nightmare, it's that I am becoming the best I can be - a better person as we continue this difficult path. One thing I have learned is that grief is not something you only experience from the loss of a physical being. Grief can be experienced in many situations including the loss of an expectation that will never be. We are grieving. We are grieving that normal life we anticipated. Our reality will never be what we expected nor will it be like any others. Our lives, and us as individuals have been shaped and grown in many ways from our experience. But for this we must also grieve.  In time we have to reach acceptance that our lives are different, our fears are different and o